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Table 5 Selected civil society organization HCV activity examples

From: Hepatitis C in Eastern Europe and Central Asia: a survey of epidemiology, treatment access and civil society activity in eleven countries

Category Activity Organization(s) involved Results and/or comments
Awareness raising National campaign using mass media and celebrities in Georgia Concerted effort by Georgian Harm Reduction Network, OSF Georgia, Georgia CAB, Medecins du Monde, Hepa+, New Vector and others Large-scale treatment program implemented
“Demand treatment!” campaign in Ukraine Concerted effort of 90 CSOs led by Alliance for Public Health Community-level HCV screening to document prevalence; subsequent national and regionally/locally-funded HCV treatment programs
Mobilization HCV advocacy and policy brief research and dissemination in 11 countries Eurasian Harm Reduction Network; Kyrgyz Harm Reduction Network; Andrey Rylkov Foundation (Russia; Treatment Preparedness Coalition (Russia); Alliance for Public Health Evidence compiled for awareness-raising and advocacy activities
Drug registration, pricing, clinical trial and early access issue negotiation at EECA level EECACommunity Adivsory Board meetings addressing AbbVie, BMS, Gilead, Janssen and Merck Sharp & Dohme Inclusion of simeprevir on the Russian “List of Vital and Essential Medicines” and removal of telapravir, which was included due to industry price reduction (market segmentation) despite being obsolete
Advocacy DAA price reduction negotiation in Ukraine Alliance for Public Health USD 750 for a 12-week sofosbuvir course; USD 900 for a 12-week sofosbuvir/ledipasvir course
National treatment guideline modification and program endorsement advocacy neogtiations   Inclusion of DAAs in national treatment guidelines and establishment of a national and over 15 regional treatment programs; government procurement of sofosbuvir
Testing and treatment HCV treatment for HIV-HCV coinfected PWID implementation in harm reduction programs in Ukraine Alliance for Public Health Global Fund support and DAAprice reduction (above) obtained
Contribution to national HCV guideline development/revision and strategic planning Multiple CSOs inAzerbaijan, Georgia, Kazakhstan, Kyrgyzstan, Moldova and Ukraine Supports appropriate policy and program implementation