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Table 4 Civil society organization HCV activity summary

From: Hepatitis C in Eastern Europe and Central Asia: a survey of epidemiology, treatment access and civil society activity in eleven countries

Category Activities
Awareness raising National campaigns to inform decision makers and the general public Patient ‘schools’ on access to treatment and other HCV issues Media notices on HCV Educational videos
Mobilization Establishing networks of individuals and organizations to advocate HCV issues Implementing letter writing/petition signing campaigns, e.g. a ‘Treatment Waiting List’ and lower price requests to pharmaceutical companies Organizing research and reporting on HCV needs Organizing CSOs to meet with pharmaceutical companies
Advocacy Encouraging national treatment programs and guideline development Organizing campaigns aiming to bring about favorable policy and response from governments, industry and donors Negotiating lower prices with pharmaceutical companies Specific opposition to pharmaceutical patent applications and support for alternate licensing
Testing and treatment Conducting screening test campaigns to identify HCV- antibody positive people (that also raise awareness and provide evidence for advocacy) Implementing treatment programs integrated into existing services, particularly for the disproportionately affected/marginalized, e.g. PWID Seeking donor funding for expanded treatment programs using updated protocols Providing community-level and technical input on national program planning and guideline committees
  1. EECA Civil Society Involvement in HCV Work